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Registration for The Social and Economic Impact of Cystic Fibrosis in Canada Survey
The Social and Economic Impact of Cystic Fibrosis in Canada: A Burden of Disease Study.
This online survey is sponsored by CF Canada and will be conducted by The Conference Board of Canada.
As Canada’s leading CF patient organization, CF Canada wants to better understand what it means to live with CF. The goal of this survey is to better understand the impact of CF on individuals and their families/caregivers. The information that we collect will be used by CF Canada
o shape our programming, inform our advocacy work and help us educate decision-makers.
The Social and Economic Impact of Cystic Fibrosis in Canada survey will collect information about the cost and time required to keep people with CF healthy. The survey will ask about different aspects of your care, such as medications, time lost from school or work, the time it takes to attend medical appointments, etc.
We have designed two surveys, one to capture aspects of living with CF and one specific for caregivers. We want to hear from as many people as we can, this includes parents/guardians of children with CF, adolescents, and adults living with CF as well as parents, family members, spouses or partners, or other
All individuals with CF living in Canada and/or their caregivers can participate in the study.
If you have CF and are 18 years of age or older,
you may provide consent to the study.
If you are not yet 18 years of age, we will require a parent or guardian to give consent on your behalf.
To register you will be asked to provide your name and email address. The registration process will take approximately 10 minutes to complete.
After registering, you will receive a unique link via e-mail
to access the survey. You will be able to use your unique link to leave the survey and return at any time.
If at any time you have questions,
Click the "forward arrow" to begin registration!
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